WHAT IS ME/CFS?

M.E stands for Myalgic Encephalomyelitis which basically means an illness which test. There is no known cure but the best approach to effects the brain, the muscles and the nervous tissue. It causes a wide range of symptoms including profound exhaustion, pain, and mental confusion. M.E is a disabling & chronic illness with no known cause and it is diagnosed by no specific treatment is management.

 

Fibromyalgia

Fibromyalgia is a chronic condition of widespread pain and profound fatigue.

The pain tends to be felt as aching or burning, often described as head to toe.  It may be worse at some times than at others.  It may also change location usually becoming more severe in parts of the body that are used the most.

The fatigue ranges from feeling tired, to the exhaustion of flue like illness.  It may come and go and people can suddenly become drained of all energy~as if someone has just " pulled the plug!"

Hello & Welcome to the Mansfield M.E Self Help Group's Website!

"Please Relax & Enjoy Yourself we are all trying to make the best of our illness and we feel we can do this better together"

The Mansfield ME Self Help Group is a local group in Mansfield, Nottinghamshire where people with M.E/CFS meet up to discuss & share with others their symptoms, experiences and everyday problems that go hand in hand when living with ME / CFS /CFIDS/ PVFS.

It is not all doom and gloom!

 Myalgic Encephalomyelitis/ Encephalopathy (ME) can also be known as

Chronic Fatigue Syndrome(CFS)

Chronic Fatigue Immune Dysfunction Syndrome (CFIDS)

Post Viral Fatigue Syndrome (PVFS)

The aim of the group is for us to get together and talk to other people who understand what we are going through. We provide a meeting place where people of all ages from all walks of life diagnosed with ME can come to find others like themselves and this helps us to realise that we are not alone. Although the severity varies with each individual, nobody understands better than those with these conditions how hard it is to live and to cope with all the problems we have to face and adapt to every single day.

 

 

 

 

 

 

 

*Fortnightly Meetings*

 At our meetings you will find an exchange of information and much needed support towards each other. The meetings are very relaxed and open. You can pop in any time between 10 30 and 12 30 on the scheduled Wednesdays(see calendar for specific dates) for a chat, and a cuppa.

Our meetings are held at

ST JOHN'S SCHOOL CENTRE

ST JOHN'S ST

MANSFIELD.

 The cost of the meetings will be £1 per meeting which is put towards the hire of room. refreshments are provided.

 Everyone with M.E plus carer/family is welcome we also welcome people with fibromyalgia, as we have realised we have a related illness!( we are all knackered!)

 

 

Everyone at our meetings is really friendly, supportive, welcoming and most of all understanding! So come along to:-

LISTEN

CHAT

SHARE YOUR PROBLEMS

MAKE NEW FRIENDS

AND GIVE US YOUR IDEAS ON WHAT YOU WOULD LIKE THIS GROUP TO BE!

our worst enemy is isolation and feeling depressed!

Don't just feel miserable come along and make new friends!

 

 

 

 

*Telephone Information & Help Line* 

07790 158 509

(You can contact Jan Monday-Thursday between 1pm-5pm)

 

*Email Contact Address*

Email us at megroup@fsmail.netanytime.

 

 

 

 

 

 

*Website*

 On this website you will find out What's Going On Within The Mansfield ME Group (Meeting Schedules, Events etc), Information on M.E / CFS, Contact Information.

**To explore & read more you can access all features of this website by using the navigation menu on the left hand side of this page**

 

 

 

 

 

 

 

 

 

M.E AWARENESS DAY

May 12th has now been designated as "International Awareness Day" for a number of Chronic Diseases and Syndromes

M.E. - Myalgic Encephalomyelitis
FMS - Fibromyalgia
CFS - Chronic Fatigue Syndrome
MCS/EI - Multiple Chemical Sensitivity or Environmental Illness

No matter what name you use the one thing these illnesses all have in common is a lack of awareness and most importantly a lack of funding for research.

 

 

 

 

Any questions or ideas  for this Website please contact Kath at

katie.radford@yahoo.co.uk

www.mansfieldmegroup.org.uk

 

 

DISCLAIMER:- The views expressed on this website are for information only and should not be used in place of advice from qualified & experienced professionals. We try to make sure all information is accurate and up to date but we cannot take responsibility for items included in this web site or guarantee their accuracy. Any use you make of this information is at your own responsibility.

 

 

 

 

 

 

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